IPF Care – proven to reduce discontinuations and increase satisfaction with Esbriet

Posted on 23 August 2016

The IPF Care patient support programme provides support, education, and empowerment to patients receiving oral pirfenidone treatment for IPF in Europe.

The programme provides individually tailored support through frequent, patient-managed discussions with specialist IPF Nurses and home visits. Patient calls and visits are open, patient-led and dictated by individual circumstances and needs. Patients receive practical advice on how to cope with IPF on a daily basis, how to manage symptoms, treatment and AEs over both the short and long term.

Results:

- Clinically proven to increase adherence

- Reduced discontinuations

- Satisfaction surveys reveal patients feel better informed and more confident and supported in their disease management

- Results published: Duck, Chaudhuri et al. 2015. IPF Care: A Support Program for Patients with Idiopathic Pulmonary Fibrosis Treated with Pirfenidone in Europe. Adv Ther 2015

See the published results at http://www.ncbi.nlm.nih.gov/pubmed/25691376

The Man Plan delivers better health outcomes for prostate cancer patients

Posted on 9 May 2016

The Man Plan is a wellbeing programme for prostrate cancer sufferers, specifically designed to offset some of the side effects of ADT treatment that can lead to discontinuation and poor outcomes. The programme has been developed in collaboration the Vario Health Institute at Edith Cowan University. It is majority funded by Abbott to support Lucrin patients (with a small co-contribution by the patients).

Patients have the choice of engaging with exercise physiologists in person / group sessions, by phone, or they can self manage the regimen at home. Guardian CRM system is used to manage patients and is the portal where all data is inputted by allied HCPs (exercise physiologists, physiotherapists and health coaches). Many methods of progress tracking are used including the validated SF8 Quality of Life tool, and the measurement of exercise parameters.

Results:

The data collected in Guardian was analysed and published as a poster at the Urological Society of Australian & NZ Congress and in the Medical Journal of Australia

-  Statistically significant improvements in nearly all health outcomes

-  Significant improvements in QoL

-  The programme was publicised by patient groups

-  A significantly higher proportion of patients remained on treatment at 18 month

See the published results at http://urologytimes.modernmedicine.com/urology-times/content/tags/adt/exercise-program-benefits-men-treated-androgen-deprivation-therapy?page=full

See the poster at https://www.auanet.org/university/abstract_detail.cfm?id=775&meetingID=13SAN